Lilly's Gift for SMA Research Appeal

Spinal Muscular Atrophy (SMA) is a degenerative motor neuron disease that affects one in 6000 babies. The protein needed to build muscles in the body is not produced, which causes the muscles to slowly degenerate.

There is currently no cure or any proven treatments to help slow the progression of the disease, with diagnosed babies rarely living to see their first birthday.

Lilly Conlan sadly passing away from SMA at just six months of age. Lilly’s parents established the SMA Research Appeal in their daughter’s name. Funds raised will be distributed to organisations already doing great work providing support, undertaking research and promoting awareness of SMA.

Donations of $2 or more are tax deductable.

*Lilly's Gift for SMA Research is a management account of Community Enterprise Foundation™ ABN 69 694 230 518, The Bendigo Centre, PO Box 480, Bendigo, Vic 3552. The Foundation will make distributions by way of grants, following receipt of applications from organisations endorsed with an item 1 Deductible Gift Recipient (DGR)

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